What is this?
Digital Health education is how you learn about the technology that can provide you with better information about health and what devices or applications can be applied to bring about improvements or learn more about a disease or manage a condition.
There are many technology resources which transfer, classify or calculate information about you, to give you or your healthcare professionals, more information about your illness, symptoms, diagnosis, interventions, response to treatment and how you progress or even predict your health outcomes in the future.
In the past you may have made a diary of how you feel everyday or what your symptoms are, to help your doctor understand more about you and your illness or your child’s health
In a digital world this can be done very quickly, on a daily basis and because we are connected through the internet with smartphones or devices, we can share this information with specialists in real-time.
Being educated about digital health resources, related to our own health or illness, means we can learn more and decide which services or resources can help us more, help our healthcare professionals and offer us improved quality of life, care or better treatments .
In this way we can decide how and who we share our data with.
Sharing our data, means working out how and where we share this personal information. For example we are used to discussing our health matters with family and friends. or healthcare professionals, including our pharmacist, or healthcare providers, who are helping us to manage our health.
Today we are all connected via the internet which offers many opportunities for sharing or discussing our health, however not all these online spaces are designed to be secure for this kind of data.
Choosing a secure environment for helping us to manage our health , keep in contact with our healthcare professionals, have the relevant information with us and in the event of any situation when we travel, have access to it, enables us to receive the medical attention we need for our personal health, even in other countries.
Learning about these resources, our role and who engages with us responsibly, helps us to take decisions on where we store or share our data, recognising those organizations who are committed to our health and wellbeing to bring us the services and support that are valuable to us and respect our privacy.
Digital Devices or Apps
Using digital tools or apps is very easy for most people, especially younger generations. Older people in different countries, are also adapting to using devices and smartphones even in countries with less resources. This means they can access educational resources about their health and learn more about managing their health issues with online support, questionaires, videos, telephone support or games.
However, learning about managing some of this technology and why we need it, means we may benefit from someone who can support us, initially. That’s fine because we are all learning more about our health every day. Google, patient organizations’ websites, social media and healthcare services, have helped us, as well as talking to patients with the same illness, across the world.
But this doesn’t always mean that we have a better conversation with our doctor, or we understand about our diagnosis or how a care plan helps us which are all so important to understanding how we manage our health and how to lead our lives in the best way possible.
This is why digital health education, is so important.
My health data
Downloading an app and connecting with a platform, means you may be sharing your health data with another party. This maybe a healthcare organization or a doctor.
Using whatsapp with your physio is another way of keeping in contact and sharing information about a treatment, or its effect, so that you can improve your exercise rehab plan.
However, if you are looking for somewhere secure for health data, which is meaningful to your healthcare professionals, to guide you in your disease management or care plan, then you need to understand that it is important to identify resources where you can share with them in a secure online space.
Owning your data means you can decide how you will take care of yourself. Who you will seek care guidance from and in the case of people with rare diseases, who you can collaborate with to improve the opportunity of developing new therapies in the future or better care.
This in the future may lead to innovative ways of financing your care, when working together with large numbers of citizens with the same needs, in organizations dedicated to patients’ interests and concerns.
How can we help?
We understand from patient experience worldwide, that key to your approach to managing your health better, it is your desire to have a better relationship with your doctor(s).
So we need to help you have a better conversation with your doctor, in a shorter time, to help them work out the right treatment for you and your illness, check on your diagnosis or next steps you need to take in your healthcare.
Providing a trained educator and using a digital care plan, helps you to learn & record your daily outcomes and progress , more easily, keeping track of your personal health information…
You can then share this with your doctor or healthcare professional directly online , or on your next visit with your own progress charts and tests available to discuss.
Using a secure space to work on a daily-care plan, where they can follow your progress and guide you on exercise or your symptoms , means it is getting easier to make progress together.
The future of R&D
Lovexair aims to build a trusted ecosystem for patients, healthcare professionals, organizations, research institutes, universities or public-private partners.
We have the opportunity to work together from a patient community and facilitate relationships for research and development where we are qualifying with your participation a new and important role in the future of your health.
How can we do this?
Patients who are registered in Happyair platform, will receive information about specific studies, can consult their educator and are invited to participate when interested, understanding what their participation involves.
Lovexair requests specific consent from patients who are interested, in order to share only the relevant anonymous data necessary, their opinions and reported outcomes which are useful to providing important knowledge about their disease, care or new treatments.
The information requirements needed are relevant to the study or program which is managed from our technical-clinical team supported by trained educators.
Working together, informing and educating, we can increase our capabilities on how you participate as a patient or family-member. We can review the information collected in the Happyair platform ,and then each person can choose if they wish to participate in research and development in key areas such as:
- Design of Care and intervention programs to reduce problems or issues patients face in care or specific disease areas, where healthcare professionals recognise there needs to be innovation or prevention.
- Improve how we participate in developing our access to new care and treatments. How those treatments affect us. Patients give feedback on their own personal experience , when taking innovative therapies or medication in clinical studies.
- Try out new devices or applications from tech companies, which can help us improve our quality of life, support activity monitoring, sleep, our cognitive skills, physical capacity or improved mobility.
- Contribute to recognised clinical research registries by integrating anonymous data from our database to international registries which is particularly important for rare disease.
- Collaborate on identifying new care support solutions to bring care to people who are under-priviledged , need medication, oxygentherapy or specifical clinical support in particular regions where resources are very limited or inadequate.
- Identify ways of reducing cost of care, treatment or access to expensive therapies once we have built a large number of users registered in our platform.
- Build a smart community where patients, family-members and healthcare professionals are connected and sharing meaningful information and resources which can help us accelerate progress in respiratory health supported by committed partners who are working with us in an ethical ecosystem.